I agree, Williamsmith, especially because it is such a long, drawn out disease that families just can't do it at home, a lot of patients are living 10 yrs with it and the last 5 are very difficult, care wise. And I've had patients bed bound and contracted in the fetal position live like that for 2 years on applesauce and water. They are supposed to aspirate, get pneumonia and die at that stage or get an infected wound that goes septic, all kinds of things so that they die early once in this stage. On hospice, that was not the norm. How are we going to pay for all the boomers during their last 5 yrs with it? It will be a crisis.
Dementia and ALS- my two worst diseases that I would want to die quickly, no such luck with dementia.