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Thread: I want to feel good again.

  1. #1
    Senior Member CathyA's Avatar
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    I want to feel good again.

    I've had fibromyalgia and osteoarthritis for a long time, but things began to deteriorate in November. I had tons more pain everywhere. Then I got several upper respiratory infections, then a supposed UTI treated with Keflex. But I keep feeling worse and worse. I haven't seen my Internal Medicine doc since February because he always blames everything on the Fibro and wants me on another SSRI. Yes, my main labs are normal, but we aren't all the same, right? And there are conditions that require a little more investigation.

    Anyhow......I just feel sick a lot. Then a couple weeks ago I started having irregular heartbeats. I've always had them intermittently and my heart tests always checked out okay. I think I don't absorb the magnesium I take, but the E.R. and the doc weren't interested in giving me I.V. magnesium. I went to the E.R. several weeks ago for having so many irregular beats. They were so busy I was in a bed in the hallway and wasn't even on a monitor. But they did do an EKG and my Troponin was normal (It's up when you've had a heart attack). Last week I followed up with a cardiologist (who's supposedly very good). I was on a holter monitor for 2 days and am awaiting the results. But they couldn't get me in to have a stress echo for 3 weeks.

    Anyone else have benign irregular heartbeats? They sure signal the body to worry about them. Some people have lots of them and don't feel a single one. I, unfortunately, feel every single one. It thumps me in the chest and takes my breath away. I think it has something to do with my esophagus/stomach..........but each specialist seems to know NOTHING beyond their specialty.

    I think medicine is in a sorry state of affairs. And where's there ever any compassion?? Are all the docs just too busy now?

    Sometimes I try to resign myself that I might drop dead, and try to be okay with that. I've been to several specialists now and feel like they really weren't very comprehensive.

    Is it because I'm old? I know that anxiety and depression can do weird things to you, but I've never felt sick to my stomach and weak because of it. Maybe it's just taken on a different face?

    Sorry for the whining...........but I feel like I'm falling through the cracks big time.

  2. #2
    Senior Member Ultralight's Avatar
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    Quote Originally Posted by CathyA View Post
    I've had fibromyalgia and osteoarthritis for a long time, but things began to deteriorate in November. I had tons more pain everywhere. Then I got several upper respiratory infections, then a supposed UTI treated with Keflex. But I keep feeling worse and worse. I haven't seen my Internal Medicine doc since February because he always blames everything on the Fibro and wants me on another SSRI. Yes, my main labs are normal, but we aren't all the same, right? And there are conditions that require a little more investigation.

    Anyhow......I just feel sick a lot. Then a couple weeks ago I started having irregular heartbeats. I've always had them intermittently and my heart tests always checked out okay. I think I don't absorb the magnesium I take, but the E.R. and the doc weren't interested in giving me I.V. magnesium. I went to the E.R. several weeks ago for having so many irregular beats. They were so busy I was in a bed in the hallway and wasn't even on a monitor. But they did do an EKG and my Troponin was normal (It's up when you've had a heart attack). Last week I followed up with a cardiologist (who's supposedly very good). I was on a holter monitor for 2 days and am awaiting the results. But they couldn't get me in to have a stress echo for 3 weeks.

    Anyone else have benign irregular heartbeats? They sure signal the body to worry about them. Some people have lots of them and don't feel a single one. I, unfortunately, feel every single one. It thumps me in the chest and takes my breath away. I think it has something to do with my esophagus/stomach..........but each specialist seems to know NOTHING beyond their specialty.

    I think medicine is in a sorry state of affairs. And where's there ever any compassion?? Are all the docs just too busy now?

    Sometimes I try to resign myself that I might drop dead, and try to be okay with that. I've been to several specialists now and feel like they really weren't very comprehensive.

    Is it because I'm old? I know that anxiety and depression can do weird things to you, but I've never felt sick to my stomach and weak because of it. Maybe it's just taken on a different face?

    Sorry for the whining...........but I feel like I'm falling through the cracks big time.
    I am very sorry to hear you are still going through this. It sounds utterly nightmarish.
    I came from a real tough neighborhood. I put my hand in some cement and felt another hand." -- Rodney Dangerfield

  3. #3
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    This is why some people take street drugs. They just want the physical and emotional pain to go away.

  4. #4
    Senior Member Ultralight's Avatar
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    I am straight edged as they get, but I would smoke mary jane if I was sick/in pain and thought it might help.

    CathyA: Can you smoke a joint?
    I came from a real tough neighborhood. I put my hand in some cement and felt another hand." -- Rodney Dangerfield

  5. #5
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    That’s terrible Cathy. I had irregular heartbeat but didn’t know it as I couldn’t feel it. 14 years ago I ended up hospitalized because I had chest pain. I did not have a heart attack but they discovered the way too fast irregular heartbeat and said I was lucky I hadn’t had a stroke. Under control now with medication.

  6. #6
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    Cathy, I'm so sorry you're feeling poorly.

    Hubby has irregular heartbeat. Sometimes he feels it, sometimes not. The first time we took him to the ER, we thought he had an upper respiratory infection. Boy, they sure scurry around when the rate is close to 200! Then, the drug to slow down didn't work. He died for a moment. It was like watching a movie, I was there but not. He recovered, but the warning was he could die at any moment. Sure messes your head up with that info!

    The ekg shows nothing, the halter shows nothing, they did some kind of trigger thing through the groin artery, all negative. He's had a chip in his chest for six months, no funny beats. If they can't find the flaw, they can't fix it.

    Like TT, he takes daily meds, but would rather be *right* without it.

  7. #7
    Senior Member Mrs. Hermit's Avatar
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    It took a week at Mayo Clinic to sort out the fibro/vagus nerve connection that messes with my heart rate. Both Cleveland Clinic and Mayo work on the whole picture of the patient's health with a team of specialists. Maybe try getting in with one of them?
    Mrs. Hermit

  8. #8
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    Sounds like that would be worth a try

  9. #9
    Senior Member iris lilies's Avatar
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    Quote Originally Posted by Teacher Terry View Post
    Sounds like that would be worth a try
    Something has to change since the same old things are not yielding anything positive.

  10. #10
    Senior Member CathyA's Avatar
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    Thanks everyone.

    Yeppj.....that's for sure about the hardcore drugs. I'm sure some people get started just for the "fun" of it, but I imagine much of it's over-use comes from people just trying to feel better, and to not be in pain. I've even thought about how great some of those drugs must make you feel (but of course, I wouldn't go there). But if nothing else makes a person feel better and get some pain relief, seems like it could be used judiciously. But I guess that's the problem.....maybe you get accustomed to it and need more....then it becomes a problem. I had a knee injection of a steroid last year. After the freaking out for the first several days, ALL my pain EVERYWHERE went away. It was heaven. But I won't do it again, because it makes your joints worse very quickly if over-used. (It's not supposed to go any further than the knee capsule, but it does).

    UL.........Back in the day, if I smoked a joint, I'd get deathly sick. Maybe it was contaminated back then, but everyone else would be loving it, and I'd be sick as a dog, and freaking out. I am considering the CBD oil though. I'm sort of slow to try things, since I'm so danged sensitive to everything. I've got a very delicate brain.

    Mrs. Hermit..........I've been wondering about my vagus nerve (that runs along-side the esophagus) for a long time. But when I brought it up to the cardiology, he looked like he didn't understand, and said a vagus nerve problem tends to make your heart too slow. It's really amazing how specialists can be so tunnel-visioned. May I ask what your symptoms were? k You can P.M. me if you would rather talk there. I may be barking up the wrong tree, but my irregular heartbeats start up whenever I lean over to do any work, or cough much, or have too full a stomach.......so I was thinking maybe a hiatal hernia or reflux....even though I might not have heartburn. But every doc I've seen always says "Oh a hiatal hernia wouldn't do that." I've read a lot that an irritated nerve in the esophagus can cause irregular heartbeats. Seems reasonable to me, since there's such a connection between that area and the heart.

    Fibro can definitely do a ton of funky things. It's a real bummer.

    As far as Cleveland Clinic and Mayo.........I've had friends get no help there. I guess I get paralyzed easily as to what to do. I'm definitely in a very unfortunate place in my head and body these days. It would probably help to have friends, but I'm not a friend person. And DH has trouble knowing how to help me. I can feel pretty desperate and alone at times. (which is probably why I'm saying all this to people I hardly know!). At least places like this are there.

    Thanks again everyone.

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