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Thread: The update

  1. #11
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    Hoping everything falls easily into place for you. You are truly an inspiration…..

  2. #12
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    Thanks for the update, TMS. Amazed at your attitude, determination and common sense! Still sending prayers and positive energies.
    To give pleasure to a single heart by a single act is better than a thousand heads bowing in prayer." Mahatma Gandhi
    Be nice whenever possible. It's always possible. HH Dalai Lama
    In a world where you can be anything - be kind. Unknown

  3. #13
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    what happystuff and frugal-one said. hoping the remainder of your journey in this life is as easy and pain-free as is possible. and if it were me, i'd keep the cats with me as long as i could. scraps of joy are still joy.

  4. #14
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    Everybody is having an issue figuring out the name of the new medicine. We have modified it, based on how it it spelled, and just calling it "fruity" to make it simple. I am pretty sure I am the first person in KU's system to be on it in KC.
    We don't know how I am going to react to it, or vise versa. Based on the trial people, if I don't get a positive reaction to it, I have somewhere between 1 month and 19 months left to live. Based on how I have turned around being on pain killers, we expect more towards the 19 then the 1, heck I might be able to drive again, soon. I can walk without a walker, although I am taking it for places that are large, so if I need to sit down, I have a seat. (had to sit down on the floor in the middle of the grocery store, before moving into parents)
    I could be back at home sooner then later, so starting back on giving away stuff.

  5. #15
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    Quote Originally Posted by ToomuchStuff View Post
    Everybody is having an issue figuring out the name of the new medicine. We have modified it, based on how it it spelled, and just calling it "fruity" to make it simple. I am pretty sure I am the first person in KU's system to be on it in KC.
    We don't know how I am going to react to it, or vise versa. Based on the trial people, if I don't get a positive reaction to it, I have somewhere between 1 month and 19 months left to live. Based on how I have turned around being on pain killers, we expect more towards the 19 then the 1, heck I might be able to drive again, soon. I can walk without a walker, although I am taking it for places that are large, so if I need to sit down, I have a seat. (had to sit down on the floor in the middle of the grocery store, before moving into parents)
    I could be back at home sooner then later, so starting back on giving away stuff.
    That sounds very very hopeful to me!! Yay!

  6. #16
    Senior Member Tradd's Avatar
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    Thanks for the update. Good thoughts continue.

  7. #17
    Senior Member catherine's Avatar
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    Quote Originally Posted by ToomuchStuff View Post
    Everybody is having an issue figuring out the name of the new medicine. We have modified it, based on how it it spelled, and just calling it "fruity" to make it simple. I am pretty sure I am the first person in KU's system to be on it in KC.
    Yeah, those names can be really hard to remember!! I do know of some recent approvals, but I'm not sure any of them sound like "fruity." However, the new targeted therapies are showing terrific promise. To your point, results are very individual, but I'm praying that you get positive results from it.
    "Do any human beings ever realize life while they live it--every, every minute?" Emily Webb, Our Town
    www.silententry.wordpress.com

  8. #18
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    Quote Originally Posted by catherine View Post
    I do know of some recent approvals, but I'm not sure any of them sound like "fruity."
    Fruquintinib

    Watching them all use that or the trademark, Fruzaqla, we laughed when I said why don't we call it fruity, and they all liked that as so much easier to remember/say, and then we all knew what we were talking about.
    Medicate smarter, not harder, LOL

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