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Thread: The update

  1. #1
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    The update

    Last week had an issue, felt like a blockage and my symptoms were similar to when my cancer, so after contacting the doctors office, they wanted me to go to the emergency room.

    I did have a blockage, but it wasn't what I was expecting. Left kidney (some sort of tube), blocked in one area, partially blocked in another. Now I have a bag on that side. CT scan showed blockage and showed the cancer had expanded. Monday going in for pet scan to show exactly how much expansion, as I am expecting to hopefully estimate my time left.
    Stopped my non working chemo and they are putting me on something pretty new (approved by the FDA in the last month, the week before they got their information on it, looks like I may be the first person in the KC area to be on it, so no one knows what to expect).
    Medical POA done, and filed with multiple places. Beneficiary deeds being finished today. Talked with who I adopted the cats from and his sibling has sobered up/been in treatment. They would be happy to take the cats back, and I think the cats would adapt easier to their prior owner. My sister would love them, but her husband and one kid are allergic.
    Next week I hope to get the vehicles TOD done.
    Been working on the will, next week will start giving some of the stuff out/away. Some will happen after I am gone, but trying to make life easier for those I leave behind.
    I am expecting 6 to 9 months left, hopefully mostly good.
    Working on the ownership of the restaurant stuff, but fighting with the idiot as he keeps thinking he has a clue of what is going on, and has been out for more then a year now (and not stepped foot in the place). He calls expecting us to close to physically pick him up and carry him into dialysis. He has been kicked out of all his ride shares, because he can't physically get himself up or down.

    If I disappear for a bit, I am just trying to get stuff done. Not being able to drive, means I need help and will have to be available on other peoples schedules, and I am grateful for the help. My hospital stay, we determined that my pain scale is so far out of whack from a normal person, that my 1, would be a normal persons 5-7. My 8 from two weeks ago, and my family said they would be dead. They have me taking pain meds to keep things under control and now I am able to walk, without a walker, not having to use a wheelchair at the doctor's office. I may be able to drive again in a couple of weeks, that will speed things along for me.

  2. #2
    Senior Member catherine's Avatar
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    Oh, so are you getting the new immunotherapy combination that was just approved very recently?? That's wonderful. I know you don't need more stringing along in this arduous journey, but I'm praying that the new treatment provides you with some relief, however you want it to come.
    "Do any human beings ever realize life while they live it--every, every minute?" Emily Webb, Our Town
    www.silententry.wordpress.com

  3. #3
    Senior Member iris lilies's Avatar
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    I am very glad you have laid out your thoughts about the path forward in the next several months. Thank you for keeping us informed. I hope your discomfort and pain is managed in the next few months.

    p.s. I LOVE you for your legacy plan for the cats.

  4. #4
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    Thank you so much for the update, it is much appreciated. Praying for your comfort and peace, and the new treatment sounds very good. Also happy they figured out your pain conundrum, as you should be living pain free as much as possible.

  5. #5
    Senior Member Tradd's Avatar
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    Thanks for the update. Glad to hear you’re feeling somewhat better and getting stuff done. Good thoughts your way.

  6. #6
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    Admiring your practical attitude towards the difficult position you find yourself in. I am certain we are inpired by your journey.

  7. #7
    Senior Member KayLR's Avatar
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    I too admire your practical approach to this time. You really make me think.

    Wishing you much peace.
    My therapist told me the way to achieve true inner peace is to finish what I start. So far today, I have finished two bags of M&Ms and a chocolate cake. I feel better already!

  8. #8
    Senior Member rosarugosa's Avatar
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    Thanks for the update, and I hope the new treatment is successful. Good for you for taking care of business and tying up loose ends.

  9. #9
    Senior Member littlebittybobby's Avatar
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    okay---hang in there, TMS. I'm hoping them MDs are wrong. O'course--in Zurra, there's THE best medicine, and that's the power o' prayer. So, I sending them. Yup. Hope that helps ya some.

  10. #10
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    Deed's done
    Got the other owner to resign off the board, so I can move forward with both the licensing and ownership stuff.
    Doctor's office appointment moved to this afternoon, telehealth (only my second one of those). Thursday going to work at residence and maybe old house to get vehicle titles.
    Tomorrow, education on new cancer treatment, hope to get scan results, so I can get an estimate if it doesn't work, how long I have left.
    Got help, brought over Blackstone I bought last year when it looked like I was going to beat this thing. Assembled and looking forward to using this weekend..
    Thinking I may go ahead with the cat transfer sooner then later, kind of making me depressed, as I enjoy them.
    Family is backing off a bit as they have been stating the obvious and pissing me off (yes I know I need to do x, y, z, and there are reasons while I am doing things in an order). Once they see WHY I do things in a certain order, they understand, but not before.

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